Tuesday, July 17, 2007

There is no easy way to say this

Since there is no good way to give bad news, we'll just say it.

On June 18th, we had to go to the ER with Vincent because of head pains. Ended up that Vincent had developped hydrocephalus. They did an emergency surgery to put a shunt in. The following day, the doctors met us to tell us that, on the scan they took for the surgery, they could see that the tumor had grown despite the radiotherapy, ie it was resistant to treatment. They also told us that their pathologist had reviewed the biopsy from the first surgery( which was done at another pediatric hospital in Montreal) and had changed the classification of the tumor to a grade 4, the most aggressive type. They told us that there is nothing more that they could do for Vincent and transferred him to hospice care (palliative care). So Vincent is now at home with us, and slowly deteriorating. We have decided to stop radiotherapy since, if it did anything, it would only prolong the decline.

For the first few weeks after the surgery for the shunt, he did't get out of bed, sleept most of the time, and practically didn't eat. We are now trying to keep the most serene atmosphere around him. The past few days have been good, he has been able to get out of bed, eat more, go outside to enjoy the sun and spend time with us. There is no way to know what is ahead, so we now live in the "here and now", enjoying every few bits of happiness possible with him. Please do keep praying for him.